Fighting for Cluster Relief
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Key Questions
- What does a cluster attack feel like?
- What is the difference between migraine and cluster headache?
- What is the difference between episodic and chronic cluster headache?
- Do cluster headaches typically decline in occurrence or stop altogether as you age?
- What are the latest treatments approved for cluster headache?
- How does oxygen work as a treatment for cluster headache?
- How are psychedelics used to treat cluster headache?
- Do triptans, ditans and gepants work for cluster headache?
- What are the biggest advocacy challenges currently facing those with cluster headache?
- How does Clusterbusters deal with suicide attempts in its community?
Interview Notes
Bob Wold
Founder and President
Clusterbusters
Bob and his wonderful wife of 45 years have raised four children and are the proud grandparents of seven. Bob was diagnosed with cluster headache approximately 38 years ago which eventually led to his founding of Clusterbusters, Inc. in 2002. In addition to his work as founder and president of Clusterbusters, Inc., Bob sits on the board of directors of the the Alliance for Headache Disorder Advocacy and was one of the founding board members of the American Headache and Migraine Association.
Bob’s work and accomplishments include legislative initiatives and organizing events for the patient community and medical professionals in Washington, D.C. Among these successful issues have been the adoption of legislation, increased research funding, testifying before the FDA for additional treatment options and the writing of training manuals for government agencies.
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The Coalition For Headache And Migraine Patients (CHAMP) is a new organization that provides support to people with headache, migraine and cluster diseases who are often stigmatized and under-served.
CHAMP brings together organizations and leaders in this disease area to enhance communication, coordination and collaboration to more effectively help people wherever they are on their patient journey.
CHAMP is working to identify unmet needs of those with headache, migraine and cluster diseases, and will work to better support patients and their caregivers.
Amgen is one of the world’s leading biotechnology companies and Novartis has nearly 70 years of experience in neuroscience, and both are committed to leading the charge together to fight the public misconceptions, stereotypes and the burden of migraine.
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